Phenylketonuria - a long term condition: Track 1
Phenylketonuria is an inherited long term condition where, from birth, the person...
Phenylketonuria is an inherited long term condition where, from birth, the person is unable to break down an amino acid called phenylalanine, a component of proteins found in many common foods. If undiagnosed or untreated, the condition can disrupt normal brain development and lead to severe learning difficulties. There is no cure for PKU, but early diagnosis and a strict dietary regime allow both normal brain development and a full life span. In this collection, 18 year old Clair and 17 year old Jack share their knowledge and experience of living with PKU.
- Duration: 20 mins
- Published on: Tuesday 15th May 2012
- Introductory Level
- Posted under: Social Care
Track 1: Phenylketonuria: Jack's story
Jack, who was diagnosed with RA at seven days old talks about living with this long term condition.
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Tracks in this podcast:
| Track | Title | Description |
|---|---|---|
| 1 | Phenylketonuria: Jack's story | Jack, who was diagnosed with RA at seven days old talks about living with this long term condition. Play now Phenylketonuria: Jack's story |
| 2 | PKU and diet | Jack talks about what he can and can't eat. Play now PKU and diet |
| 3 | Phenylketonuria: Clair's story | Clair, who was diagnosed with RA at seventeen days old, talks about her life with this long term condition. Play now Phenylketonuria: Clair's story |
| 4 | Diet and PKU | Clair talks about her diet and how it affects her day to day life. Play now Diet and PKU |
| 5 | PKU and the peer group | Clair reflects on how she feels a bit 'left behind' as a result of herlong term condition. Play now PKU and the peer group |
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