Phenylketonuria - a long term condition: Track 1

Featuring: Video Video Audio Audio

Phenylketonuria is an inherited long term condition where, from birth, the person is unable to break down an amino acid called phenylalanine, a component of proteins found in many common foods. If undiagnosed or untreated, the condition can disrupt normal brain development and lead to severe learning difficulties. There is no cure for PKU, but early diagnosis and a strict dietary regime allow both normal brain development and a full life span. In this collection, 18 year old Clair and 17 year old Jack share their knowledge and experience of living with PKU.

By: The iTunes U team (Programme and web teams)

  • Duration 25 mins
  • Updated Tuesday 15th May 2012
  • Introductory level
  • Posted under Social Care
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Track 1: Phenylketonuria: Jack's story

Jack, who was diagnosed with Phenylketonuria at seven days old talks about living with this long term condition.


© The Open University 2012


Tracks in this podcast:

Track   Title Description
1 Phenylketonuria: Jack's story    Jack, who was diagnosed with Phenylketonuria at seven days old talks about living with this long term condition. Play now Phenylketonuria: Jack's story
2 PKU and diet    Jack talks about what he can and can't eat. Play now PKU and diet
3 Phenylketonuria: Clair's story    Clair, who was diagnosed with RA at seventeen days old, talks about her life with this long term condition. Play now Phenylketonuria: Clair's story
4 Diet and PKU    Clair talks about her diet and how it affects her day to day life. Play now Diet and PKU
5 PKU and the peer group    Clair reflects on how she feels a bit 'left behind' as a result of herlong term condition. Play now PKU and the peer group