3.3 Concerns about being a carer
Some of the things people mentioned were:
- financial difficulties
- loss of status
- relationships if someone gives up paid work
- physical and emotional demands
- fears for the future
- having to ‘fight red tape’
- worry that they might seem to be overreacting.
Through their work, Jonathan and Jane identify other areas for concern. These include:
- neglect of carers' own health needs
- depression among carers
- problems arising if the carer's role comes to an end.
The last point draws attention to the fact that these carers, and the people who work with them, don't just mention problems and difficulties. Julie talks about feeling rewarded by her son's development, and Les points out that he and his wife still have a good relationship with their son. And of course, as Jonathan says, ‘Nearly a hundred percent of carers are carers because they love the person who they're caring for’.