2.6 Which UK directives have influenced palliative and end of life care in Parkinson’s?

Across the UK various directives influence palliative and end of life care in Parkinson’s. These include:

Department for Health (2005) National Service Framework for Long Term Conditions

Quality requirement 9 in this framework addresses end of life care and states that:

“People in the later stages of long term neurological conditions are to receive a comprehensive range of palliative care services when they need them, to control symptoms, offer pain relief, and meet their needs for personal, social, psychological and spiritual support, in line with the principles of palliative care.”

NICE (2017) Parkinson's disease in adults

The original guidelines from NICE were revised in 2017 and will influence palliative and end of life care going forwards.

SIGN (2010) Diagnosis and pharmacological management of Parkinson’s disease: A national clinical guideline

This emphasises that care of the person with Parkinson’s will move from a therapeutic pharmacological approach to one that places greater emphasis on quality of life issues.

National End of Life Care Programme et al (2010) End of life care in long term neurological conditions: A framework for implementation

This states that the changes in a neurological condition’s progression are recognised in all care settings as triggers for the introduction and subsequent involvement of palliative care. The provision of this care should be based on holistic assessment. This includes multidisciplinary and multiagency collaboration, good interprofessional communication, and regular review of the needs of the client and of those most important to them.

2.5 Why is it important to apply these principles early in the trajectory of Parkinson’s?

2.7 Summary of section 2