References

Section and author/date Reference

Section 2.1 – WHO 2002

World Health Organisation (2002) WHO Definition of Palliative Care. Available at http://www.who.int/cancer/palliative/definition/en/ [accessed 20 March 2017]

Section 2.1 - .Joint HSE& IHF Report 2008

Health Service Executive & Irish Hospice Foundation (2008) Palliative Care for All: Integrating Palliative Care into Disease Management Frameworks.

Section 2.2 – WHO 2002

World Health Organisation (2002) WHO Definition of Palliative Care. Available at http://www.who.int/cancer/palliative/definition/en/ [accessed 20 March 2017]

Section 2.2 –NICE 2006 (p152)

National Institute for Health and Care Excellence (2006) Parkinson's disease in over 20s: diagnosis and management

Section 2.2 - Wilson et al 2007

Wilson E & Seymour J (2007) ‘Exploring the palliative and end-of-life care needs of those affected by progressive long-term neurological conditions’ Journal of Care Services Management; 2:92–102.

Section 2.2 –NICE 2017 National Institute for Health and Care Excellence (2017) Parkinson's disease in adults Available at: https://www.nice.org.uk/ guidance/ NG71 [accessed 4 August 2017]
Section 2.2.1 – Adapted from Bede et al 2009

Bede P et al. An integrated framework of early intervention palliative care in motor neurone disease as a model to progressive neurodegenerative diseases. Poster at European ALS Congress, Turin. 2009.

Section 2.3 - Leadership Alliance for the Care of Dying People. (2014)

Leadership Alliance for the Care of Dying People (2014) One Chance to Get it Right: Improving people’s experience of care in the last few days and hours of life.

Section 2.5 - Tuck et al 2015

Tuck KK et al (2015) ‘Preferences of patients with Parkinson’s disease for communication about advanced care planning’ American Journal of Hospice and Palliative Medicine; 32:68–77.

Section 2.6 - National Service Framework for Long term Conditions, Department for Health (2005) Department for Health (2005) National Service Framework for Long Term Conditions. Available at https://www.gov.uk/ government/ publications/ quality-standards-for-supporting-people-with-long-term-conditions [accessed 2 March 2017]
Section 2.6 – NICE 2017 National Institute for Health and Care Excellence (2017) Parkinson's disease in adults Available at: https://www.nice.org.uk/ guidance/ NG71 [accessed 4 August 2017]
Section 3.2 -Detering et al 2010

Detering KM et al (2010) ‘The impact of advance care planning on end of life care in elderly patients: randomised controlled trial’ British Medical Journal; 340:c 1345.

Section 3.2 - The Irish Palliative Care in Parkinson’s Disease Group 2016 The Irish Palliative Care in Parkinson’s Disease Group (2016) Palliative care in people with Parkinson’s disease: Guideline for professional healthcare workers on the assessment and management of palliative care needs in Parkinson’s disease and related Parkinsonian syndromes.
Section 3.6 Person centred care diagram

The National Council for Palliative Care & National Voices (2014) Every Moment Counts: A narrative for person centred coordinated care for people near the end of life.

 

Section 4.1 - SIGN 2010

Scottish Intercollegiate Guidelines Network (SIGN) (2010) Diagnosis and pharmacological management of Parkinson’s disease: A national clinical guideline.

 

Section 4.3 - Twycross and Wilcock 2002

Twycross R & Wilcock A (2002) Symptom Management in Advanced Cancer.

 

Section 4.3.2 - Varanese et al 2010

Varanese S et al (2010) ‘NMDA antagonist memantine improves levodopa-induced dyskinesias and “on-off” phenomena in Parkinson’s disease’ Movement Disorder; 25(4):508–510.

 

Section 4.3.3 - Kaif JG et al (2012

Kaif JG et al (2012) ‘Prevalence of oropharyngeal dysphagia in Parkinson's disease: a meta-analysis’ Parkinsonism and Related Disorders; 18(4):311–5.

 

Section 4.6 - Richfield et al 2013

Richfield EW et al (2013) ‘Palliative care for Parkinson’s disease: A summary of the evidence and future directions’ Palliative Medicine; 27(9):805–810.

 

Section 4.6 - Lokk et al 2013

Lokk J & Fereshtehnejad SM (2013) ‘Managing palliative care in Parkinson’s disease from diagnosis to end-stage disease: what the clinician should know’ Neurodegenerative Disease Management; 3(2):169–183.

 

Section 4.6 – NHS 2011

National End of Life Care Programme et al (2010) End of life care in long term neurological conditions: A framework for implementation. Available at

https://www.mssociety.org.uk/sites/default/files/Documents/Professionals/End%20life%20care%20long%20term%20neuro%20conditions.pdf [accessed 2 March 2017]

 

Section 4.7 -DHSSPS 2010

Department of Health, Social Services and Public Safety (2010) Living Matters, Dying Matters: A Palliative and End of Life Care Strategy for Adults in Northern Ireland.

 

Section 4.7.1 - The Irish Palliative Care in Parkinson’s Disease Group (2016) The Irish Palliative Care in Parkinson’s Disease Group (2016) Palliative care in people with Parkinson’s disease: Guideline for professional healthcare workers on the assessment and management of palliative care needs in Parkinson’s disease and related Parkinsonian syndromes.
Section 4.8 - Hasson et al 2010

Hassan F et al (2010) ‘An exploration into palliative care and end-of-life experiences of carers of people with Parkinson’s disease’ Palliative Medicine; 24(7):731–736

 

Section 4.8 - Giles et al 2009

Giles S & Miyasak J (2009) ‘Palliative stage Parkinson’s disease: patient and familyexperiences of healthcare services’ Palliative Medicine; 23(2):120–125

 

Section 5.1 – Dame Cicely Saunders

Stevens E et al (2009) Palliative Nursing: Across the Spectrum of Care.

 

 

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