Table 6 of 6

PhasePercentage of people with Parkinson’s in this phaseAverage length in yearsCharacterService considerations could include:
Diagnosis11%1.6Post diagnosis before symptoms have become significant
  • Introduction to Parkinson’s nurse and relevant allied health professionals
  • Liaison with social care team regarding such things as employment, benefits and carer’s assessment
  • Self care programme – to encourage patient to take control
  • Cognitive behaviour therapy or counselling – to build resilience
  • Falls, bladder and bowel, mental health services as appropriate
Maintenance40.4%5.9Symptoms significant but largely controlled by treatment
  • Multidisciplinary health and social care input
  • Medicines management
  • Falls service
  • Bladder and bowel service
  • Mental health services
  • Outpatient and inpatient service
  • Ongoing cognitive behaviour therapy, self care and carer support
  • Increasing primary and secondary care needs as becomes complex
  • Deep brain stimulation for appropriate patients
Complex (advanced)33.6%4.9Aim is optimal symptom controlAs above
Palliative15.1%2.2Dignity and alleviation of distress
  • Pain control
  • High demand on GP/local services and/or residential care needs
  • Mental health and social work services
  • Independent living support and advanced care planning
  • Carer support

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