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Fiona Hampson-Searle Post 1

• 22 February 2023, 3:26 PM

Post Diagnosis

It feels like I no longer have my body a my vehicle. 

My independence is now remapped. Many everyday tasks once taken for granted now need to be thought about, planned, help needs to be requested, acceptance of processes and actions that involved no contingency plans, now become tasks others now need to assist me to do.

Handing over the keys of my vehicle to others that I may know and not know at all. Finding my trust index that once belonged solely to me now needs to be shared.

My family don't know me to be this helpless, indecisive and unable to make and decide matters for myself.

When I am eating or drinking my throat wont listen to me, and my legs don't take care of my motion with perfect reliability, like they used to.