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Victoria Hakes Post 1

23 May 2023, 12:19 PM

Shocked and horrified

Receiving a MND diagnosis would be very disturbing the fear of being fully aware as my body fails me would be nightmarish. I would feel very sad for myself and my loved ones witnessing its progression.  Coming to terms with a fatal disease is hard enough but to have to put my trust in those around me for complete and total support of my everyday existence, until the end is beyond scary. The comfort I would find is seeing how other people with the disease are coping this would make me feel less alone. I will have to trust more than I ever have before, at the most vulnerable time of my life and somehow find joy when I can.