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India-Louise Shannon Post 1

21 May 2024, 7:24 PM

How would I feel?

I would feel very anxious of what is to come. I would feel like a burden to my family for having to care for my every need. 

What kind of MND do I have because what if it is heredity and my son or his future children get diagnosed with it. 

Not a very long life span from diagnosis, so much to get done in terms of organising funeral etc and hardly any time to get to terms of the prognosis and what is actually going to happen. 

Feels like your whole world is ending and it would be horrible to be stuck inside your body with eventually no way to communicate.