Feelings:

Overwhelmed and shocked by the diagnosis.

Anxious about the future and what it means for my daily life.

Sad about the loss of independence and the potential changes in my abilities.

Concerns:

How will my symptoms progress over time?

What kind of support will I need as the disease advances?

Will I be able to communicate effectively with my loved ones?

How will my family cope with my condition?

Questions:

What treatments or therapies are available to help manage my symptoms?

How can I prepare for future decisions regarding my care?

Are there resources or support groups for people living with MND?

What should I tell my friends and family about my condition?

Worries:

Fear of becoming a burden to my family and friends.

Concerns about my mental health and emotional well-being.

Uncertainty about the impact of MND on my relationships.

Worrying about end-of-life decisions and ensuring my wishes are respected