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Jessie Jepson Post 1

19 January 2025, 4:20 PM

feeling lost

If I was told that I was diagnosed with MND I would feel lost. I would be feeling like this as I have been so used to being able to do everyday tasks without needing the help of anyone, being able to walk when I wanted to go anywhere I wanted, to be able to go to the toilet without needing assistance, being able to eat what I want when I want.

I would feel like I would have to be dependent on everyone who is in my life for help with even the smallest tasks in which I would normally be able to do on my own. I would feel claustrophobic without having the ability to breath normally and feeling breathless would make me feel as though I was about to have a panic attack. 

The feeling of not being able to move would frustrate me as I would want the ability to walk when I wanted to, being able to get into a comfortable position in a chair or even in bed trying to settle for the night, I would start to get frustrated as I would not be able to do these things on my own without relying on someone to help me.

Not being able to communicate with someone anymore would make me feel invisible as I would not be able to interact and join in or create conversations with those in my life or those around me, I like to be chatty and to be involved in activities so having that ability to do them things away from me would make me feel invisible and lost and it could even make me feel lonely.

The thought of the only thing that I would be able to do all day everyday is think would drive my up the wall as I could be thinking about something in which I could communicate with someone and share my thoughts with someone as I could have a really good idea or I could be thinking about something in which has happened in the past which I would like to reminisce about.

Discussion tags: helpless