Huff! my first song having known how hopeless MND is. This quickly sound to me that am on the vague of losing almost 90% capacity of my independence meaning that my day to day activities will soon be eroded due rapid deterioration of my Neurological system in my body. The feeling of not being able to eat or swallow any form of food is killing. Not being able to respond to any form of stimuli is a big agony to  living.

I imagined this health condition that will eventually remove all capacity like; (swallowing, Breathing, Moving, Thinking and Communication of needs) from daily living of a being as second to death. This health challenge gives nothing but hopeless situation to even little comfort at end of life. What a terrible feeling!!