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DONNA Milne Post 1

• 29 July 2025, 9:41 AM

The unknown, loss of me, invisible

If I had MND, I would feel scared not just of the diagnosis, but of the road ahead. The idea of fading away while still fully aware, it’s a quiet kind of horror.
The unknowns would haunt me: How will I die? Will it hurt?
The thought of struggling to breathe, of slowly losing the ability to move, to speak, to even say “I love you”, that would terrify me. 

I’d fear the silence more than the pain. Not being able to tell the people I love how much they mean to me. Not being able to laugh with them, or even hold their hand without help. I might feel trapped inside my own body, watching life go on without me, unable to fully take part. I’d worry about being a burden. About people avoiding me. About being forgotten while still here.