If I were just diagnosed with MND, I’d probably be in complete shock, not knowing what to do next. I’d feel overwhelmed and uncertain about the future, wondering what it means for my health and how things are going to change. My first thoughts would likely be about what I can do right now to manage it, how I can stay as independent as possible, what treatments or therapies might help, and how my family and friends can support me.

I’d probably have questions about how to prepare for the changes ahead and what kind of resources or support I could access. I’d also be worried about what to say to the people I care about, how to talk to them about it, and how they might cope with the news as well.