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Ellie Lily Elsie Rose Victoria Fennell Post 1

• 9 January 2026, 9:21 AM

How Might it Feel?

I would be scared. I would be wondering what my future holds, how it will look in a few months, years. How quickly will the disease progress, what will I loose first, my mobility, my ability to talk and eat. Who is going to look after me? Will I be a burden on my family. How will I work? What am I going to be able to do to make me feel like I have achieved something every day.