The standard view of this forum does not always work well with assistive technology. We also provide a simpler view, which still contains all features. Switch to simple view.
Your user profile image

Jaymi Mackenzie Post 1

• 18 January 2023, 2:43 PM

MND Dignosis

If I received an MND diagnosis, I think my initial reaction would be that of complete devastation before entering the grief cycle.

How will this affect me?

How will this affect my family

How long before I begin to lose my mobility, dexterity, ability to swallow, ability to talk, ability to breathe?

Who is going to look after me?

How long will I suffer?

How will my family cope caring for me? watching me deteriorate before I die?

Depending on my emotional state, I might even become a bit pragmatic at times, what can I do to help myself, so that I am able to retain some strength, what support do I need, what support is out there for me?


However overall, I think I would be completely overwhelmed, very anxious and extremely terrified that I am losing control of my body and will become dependant on others.


Discussion tags: mnd diagnosis