Here's a reflection on how I might feel, and the concerns, questions, and worries I might have if I were just diagnosed with MND
Emotional Response
- Shock and denial: "This can't be happening to me."
- Fear of the unknown: "What does this mean for my future?"
- Sadness and grief: "I'm going to lose my independence and mobility."
- Anxiety and uncertainty: "How quickly will my condition progress?"
Concerns
- Loss of independence: "Will I be able to care for myself?"
- Impact on relationships: "How will this affect my family and friends?"
- Career and finances: "Will I be able to continue working?"
- Physical symptoms: "Will I experience pain, discomfort, or difficulty breathing?"
Questions
- What type of MND do I have?
- What are the treatment options available?
- How quickly will my condition progress?
- Will I be able to participate in activities I enjoy?
- How will I manage my symptoms and maintain my quality of life?
Worries
- Becoming a burden to loved ones
- Losing my sense of identity and purpose
- Experiencing cognitive decline or memory loss
- Facing financial difficulties due to medical expenses or loss of income
- Dealing with the emotional and psychological impact of a terminal illness
Comparing my thoughts with others, I notice that many people share similar concerns and worries, such as:
- Fear of loss of independence and mobility
- Uncertainty about the progression of the disease
- Concerns about the impact on relationships and