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Shelley Saxon Post 1

• 6 February 2025, 2:11 PM

How might it feel?

I think my first reaction will be emotion - the sense of loss, loss of a life I imagined for myself.  I know when my mother received a terminal diagnosis, in the 2 weeks afterwards, quietly when no one else was around, I grieved; that she wouldn't be there for me or my children as they grow.  So if I was to face a diagnosis of MND, which I know is terminal, my first reaction would be to grieve the loss of the life I thought I might have, the pain of not seeing my grandchildren grow into adults.  Once I had grieved for 2 weeks, having spent all that pain, I would do as I did for my mother, I would focus on life, making the most of every day even as those days will change