Sadly, as a teenager I watched my grandmother die to MND.  I saw my mum, aunt's uncles look after her and I saw the impact on our wider family.  I know what to expect or at least what my teenager version of me remembers.

It will rip the soul out of my life.  I love cycling and going to the gym.  I love getting up and driving to the office to work.  I'd gradually lose all of this and yet from within I would know exactly what I can no longer do.

Then I would reflect on the burden I have become to my wife, my kids, my brothers and friends.  That's a double whammy.  I now feel guilty as well.

I will wonder how long I have left to live, what I want to see and what I'll miss.

Then, I think I would want to go quickly and quietly.