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Pamela Kelly Post 1

• 22 June 2020, 8:17 PM

Data management - UCD

My institution - University College Dublin has a number of guidelines and policies on the security and retention of research data (link to page here). The main points are that UCD own all data unless otherwise specified in funding agreement. The responsibility of storage, protection/security and retention of data is down to the principal investigator and the researchers obtaining and using the data. PIs and researchers must protect the rights and privacy of individuals in accordance with the Data Protection Act 1988 and the Data Protection (Amendment) Act 2003 when using data obtained for research from individuals.

The guidelines are useful, it is good to have them, but to really understand them and the legalities of obtaining, retaining and protecting data PIs and researchers would have to look to other sites.

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Pamela Kelly Post 2 in reply to 1

• 22 June 2020, 10:07 PM

Sharing data

It is great to hear of all the initiatives for sharing data and the sense it makes for us all to share our data to move science forward. In my research I just wonder about patient data and how shareable is that... After intense ethics reviews and ensuring anonymity of patients I wonder how our ethics committee would react to the sharing of data after the project is finished - would this have to be included in the patients consent form...

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Sandeep Chakravartty Post 3 in reply to 1

• 18 July 2020, 5:18 AM

Good