To be told I have MND would be a life changing diagnosis. even from day one, When I am still relatively able to function in daily life. A lot of people are diagnosed before they become trapped in their own bodies. That is something that you know is too come.

There would be the initial shock, The over whelming fear of what is to come, The knowledge that my once quite normal life would be changing not just for me but for my family and friends. There would be worry. As the condition progressed I would not be able to work and not be able to earn money. I would have to fall into the already difficult benefits system and what was once taken for granted financially would be a rare luxury. There would be the research into the particular type, how long do I have, what can I expect, the panic…..

How would I feel about my family – my wife, children etc. seeing me slowly or in some variation of the quickly deteriorate and die. Would I choose to cut myself off from them to try and save them the spectacle or would I become selfish in a different way and demand more from them emotionally, financially and physically. Regret would also play its part as my health declined. Regret I didn’t do more, see that sight or travel to that place. Regret I would not see grandchildren, make up for that argument that may have happened and friends lost.

Time is our most precious commodity. When it is diagnosed as finite how would I choose what to do first. How can I know how I would feel?