Semaine 8 : Prendre du recul, regarder en avant

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9. Références

The Autism Directory (2017) Autism friendly [Online]. Available at www.theautismdirectory.com/listing/autism-friendly (Accessed 8 November 2017).

Autistica (2016) Your research priorities [Online]. Available at autistica.org.uk/our-research/our-research/your-research-priorities (Accessed 8 November 2017).

Banks M.A. and Jeffrey-Wilensky J. ‘Coronavirus threatens autistic people living in group homes’ Spectrum News 21-05-2020. Available at https://www.spectrumnews.org/news/coronavirus-threatens-autistic-people-living-in-group-homes/ (Accessed 24 March 2021)

Baron, M. and Roth, I. (2017) ‘Michael Baron in conversation with Ilona Roth’, presently unpublished audio recording.

Boustead, G. (2015) ‘Debating the merits of “autism” as a diagnostic category’, Spectrum, 11 March [Online]. Available at spectrumnews.org/opinion/cross-talk/cross-talk-debating-the-merits-of-autism-as-a-diagnostic-category (Accessed 8 November 2017).

Colizzi M, Sironi E., Antonini F., Ciceri M.L., Bovo C., Zoccante L. ‘Psychosocial and Behavioral Impact of COVID-19 in Autism Spectrum Disorder: An Online Parent Survey’, Brain Sciences, 2020, 10(6): 341. Available at https://doi.org/10.3390/brainsci10060341 (Accessed 24 March 2021).

Deweerdt, S. (2014) ‘Genetics first: a fresh take on autism’s diversity’, Spectrum, 24 November [Online]. Available at spectrumnews.org/features/deep-dive/genetics-first-a-fresh-take-on-autisms-diversity (Accessed 8 November 2017).

Elsabbagh, M., Divan, G., Koh, Y. J., Kim, Y. S., Kauchali, S., Marcín, C., Montiel-Nava, C., Patel, V., Paula, C. S., Wang, C., Yasamy, M. T. and Fombonne, E. (2012) ‘Global prevalence of autism and other pervasive developmental disorders’, Autism Research, vol. 5, no. 3, pp. 160–79 [Online]. Available at www.ncbi.nlm.nih.gov/pmc/articles/PMC3763210 (Accessed 8 November 2017).

Gould, J. and Ashton-Smith, J. (2011) ‘Missed diagnosis or misdiagnosis? Girls and women on the autism spectrum’, Good Autism Practice, vol. 12, no. 1, pp. 34–41(8).

Grandin, T. (1996) Thinking In Pictures, New York, Vintage Books.

Hattenstone, S. and Hattenstone, M. (2016) ‘The A Word: a father and his autistic daughter give their verdict’, The Guardian, 22 March [Online]. Available at www.theguardian.com/tv-and-radio/2016/mar/09/the-a-word-autism-funnier-than-this-tv-drama (Accessed 18 April 2018).

Iemmi, V., Knapp, M. and Ragan, I. (2017) The Autism Dividend: Reaping the Rewards of Better Investment, London, National Autism Project [Online]. Available at nationalautismproject.org.uk/wp-content/uploads/2017/01/autism-dividend-report.pdf (Accessed 7 November 2017).

Kishore, M. T. and Basu, A. (2011) ‘Early concerns of mothers of children later diagnosed with autism: implications for early identification’, Research in Autism Spectrum Disorders, vol. 5, no. 1, pp. 157–63.

Lawson, W. and Roth, I. (2011) ‘Wendy Lawson in conversation with Ilona Roth’, audio recording from Open University module SK124 Understanding the autism spectrum. Full transcript of conversation available here.

Lockwood Estrin, G. et al. (2020) ‘Barriers to Autism Spectrum Disorder Diagnosis for Young Women and Girls: a Systematic Review’, Review Journal of Autism and Developmental Disorders. Available at https://doi.org/10.1007/s40489-020-00225-8 (Accessed 25 March 2021).

Matson, J. L., Worley, J. A., Fodstad, J. C., Chung, K.-M., Suh, D., Jhin, H. K., Ben-Itzchak, E., Zachor, D. A. and Furniss, F. (2011) ‘A multinational study examining the cross cultural differences in reported symptoms of autism spectrum disorders: Israel, South Korea, the United Kingdom, and the United States of America’, Research in Autism Spectrum Disorders, vol. 5, no. 4, pp. 1598–1604.

Nordahl-Hansen, A., Tøndevold, M. and Fletcher-Watson, S. (2018) ‘Mental health on screen: a DSM-5 dissection of portrayals of autism spectrum disorders in film and TV’, Psychiatry Research, vol. 262, pp. 351–3 [Online]. Available at www.sciencedirect.com/science/article/pii/S0165178117304225?via%3Dihub (Accessed 3 May 2018).

Packham, C.: Asperger’s and Me (2017) BBC 2, 17 October.

Pellicano, E. and Stears, M. (2011) ‘Bridging autism, science and society: moving towards an ethically informed approach to autism research’, Autism Research, vol. 4, no. 4, pp. 271–82.

Stewart, S. (2016) Broken Promises, The National Autistic Society Northern Ireland/Autism NI [Online]. Available at www.autism.org.uk/get-involved/media-centre/news/2016-06-01-broken-promises.aspx (Accessed 8 November 2017).

Tekola, B., Baheretibeb, Y., Roth, I., Tilahun, D., Fekadu, A., Hanlon, C. and Hoekstra, R. A. (2016) ‘Challenges and opportunities to improve autism services in low-income countries: lessons from a situational analysis in Ethiopia’, Global Mental Health, vol. 3, no. e21 [Online]. Available at www.ncbi.nlm.nih.gov/pmc/articles/PMC5454792/pdf/S2054425116000170a.pdf (Accessed 7 November 2017).

Tekola B, et al. (2020) ‘Adapting and pre-testing the World Health Organization's Caregiver Skills Training programme for autism and other developmental disorders in a very low-resource setting: Findings from Ethiopia.’ Autism, 2020 Jan;24(1): 51–63. doi: 10.1177/1362361319848532. Epub May 16, 2019. PMID: 31094208; PMCID: PMC6927066.

The Street Journal, October 8 2020, ‘Ethiopia: Do We Care? the Challenges of Addressing Autism in Ethiopia’. Available online at https://thestreetjournal.org/2020/10/ethiopia-do-we-care-the-challenges-of-addressing-autism-in-ethiopia/ (Accessed 25 March 2021).

Tilahun, D., Hanlon, C., Fekadu, A., Tekola, B., Baheretibeb, Y., and Hoekstra, R. A. (2016) 'Stigma, explanatory models and unmet needs of caregivers of children with developmental disorders in a low-income African country: a cross-sectional facility-based survey’, BMC Health Services Research, vol. 16 [Online]. Available at https://bmchealthservres.biomedcentral.com/articles/10.1186/s12913-016-1383-9 (Accessed 3 May 2018).

Tilahun, D., Fekadu, A., Tekola, B., Araya, M., Roth, I., Davey, B., Hanlon, C., Hoekstra, R. A. (2017) 'Ethiopian community health workers’ beliefs and attitudes towards children with autism: impact of a brief training intervention', Autism, 25 September [Online]. Available at http://journals.sagepub.com/doi/10.1177/1362361317730298 (Accessed 3 May 2018).

Wallace, S., Fein, D., Rosanoff, M., Dawson, G., Hossain, S., Brennan, L., Como, A., Shih, A. (2012) ‘A global public health strategy for autism spectrum disorders’, Autism Research, vol. 5, no. 3, pp. 211–17.

Zeliadt, N, (2017) ‘Partnerships with people on the spectrum yield rich research insights’, Spectrum, 22 December [Online]. Available at spectrumnews.org/news/partnerships-people-spectrum-yield-rich-research-insights (Accessed 18 April 2018).