I am currently working as an OT in acute hospital working across an movement disorder outpatient clinic and inpatient wards.
My primary role within the MDT would be supporting when admitted with equipment provision, review of transfers and signposting to local charities that can support. I can refer to wheelchair services as required but the community tend to complete this as 'acute' illness can impact the patients function.
I can see how the MDT will tailor their input depending on the stage and complexity of symptoms that the service user is experiencing. The guidelines states that people with MND should be reviewed regularly to ensure timely adjustment to medication and therapy input. This is an ideal but within busy, pressured environments may not be as regular as patients would like.
MND is progressive and so its imperative that conversations about ongoing care and equipment needs happen early. As an OT - we are essential in these conversations and when patients are admitted it can act as a "cross roads" and allows for these difficult conversations to take place. Signposting to local charities and the local mental health / wellbeing service can support patients and family to understand the diagnosis and consider finances and affairs organised.
The next of kin may also be involved in the patients care and its important to consider their wellbeing and ensure 'carer burnout' doesn't occur. The guidelines advise that during multidisciplinary team assessments other appointments that the psychological impact of MND is discussed.