The patient view of multidisciplinary care
This week's learning material.
This video will explain what you will be doing this week.
Recommended reading
Patients and health and social care professionals want the same thing – safe, effective and reliable care. People receiving care want it tailored their personal needs. The person living with MND should be at the centre of care provision, making decisions, along with their family where appropriate, working with their care team to get the best possible outcome.
This person-centred approach is responsive to the needs, circumstances and preferences of the individual. Patients can provide excellent insights into how effectively the multidisciplinary team is operating and how it might work better.
If you read one thing this week make it this:
Understanding my needs. MND Association.
If you have more time to explore, or this topic interests you perticularly - here is some further recommended reading for this week:
What is person-centred care and why is it important?
Person-Centred Care, Health Education England
From symptom onset to a diagnosis of amyotrophic lateral sclerosis/motor neuron disease (ALS/MND): Experiences of people with ALS/MND and family carers – a qualitative study [this is a pay to view article]
Motor Neurone Disease family carers’ experiences of caring, palliative care and bereavement: An exploratory qualitative study [this is a pay to view article] http://journals.sagepub.com/doi/abs/10.1177/0269216311416036