Having watched the videos and reflected on the experience of the two individuals as well as considering the lived experience of my MND patients. 

In the first video she states that she doesn't use her GP when facing challenges to MND symptoms / medication. She uses her MND MDT team. It would improve care for patients if GPs are aware of current treatment plans and can access the information. However, it is understandable that she would reach out to the MND team as they are the clinical experts. 

The experiences in both videos were positive about medication and they both felt their MDT were responsive to changing medication and prescribing new medication. However i have known some patient to find sourcing medication from pharmacy in timely manner to be challenging and they had difficulty getting repeat prescriptions and PRN medication.

There is difficulty at times with infomation sharing among the wider. In England most trusts have one system for GP note writing, another for community input and a different system for acute hospital or outpatient appointments. There is difficulty sharing information between hospitals at times as some note taking is still done on paper and scanned in while other hospitals have electronic notes only. The primary means of communcation is letters and calling / emailing one another which is understandable time consuming for the professionals. This understandably impacts care and means that the patients / next of kin end of retelling information between care agencies. 

Having assessments/ test and investigation prior to the assessment with the consultant MDT appointment to improve efficiency of these appointments. At times blood tests, scan or physio appointment haven't been completed to their is a limited clinical picture for the medical team to consider when reviewing these patients.