I am very fortunate to be based within a team of Neuro PTs, OTs & Clinical Psychologists. As the Navigator, any patients with MND and other Rare and Progressive conditions (RPC) who are referred to our service and haven't been seen by us before, or 12 months have passed since their last contact will be seen by myself for an MDT assessment. 

I then task the OT/PT/CP as required. 

Often other services (SLT, Dietetics, Hospices) are already involved in the patients care due to my role being relatively new. Going forward, the idea is that as soon as a patient is given a diagnosis, the Consultant will refer to me so we can get in early and build that rapport. 

I now chair the Neuro Palliative MDT each month and this is a really beneficial meeting. We have a no rejection referral policy within that MDT so that any patients with a RPC will be seen by us without question. Often these patients get flagged to one another at these MDTs and depending on what is being raised and by who, will depend if myself, the Palliative care team, SLT etc will then go back in. It is a really great MDT and a really positive example on how things can work well.