The guidelines support practice really well and are useful to
refer back to when you need legislation to back you up.
In relation to the first
point, I feel we have a broad range of professionals who have experience of MND
however we are a team that see people with any physical health condition so are
therefore not always "specialist" in MND. I have addressed this issue
before and we have tried to allocate people with MND to certain people with
experience and the skills required.
I also find there is a
lack of specialist social care workers who understand the challenges of MND and
this can cause issues with timings of care provision.
We do have an MND
co-ordinator and this works really well to ensure relevant professional are
involved.
The greatest challenges for an MDT in regards to people who have
MND are time. The person can deteriorate so quickly, it is difficult to pull
together that MDT to have important discussions in a timely way. There is also
huge time pressures on staff so this causes additional issues to be able to
respond immediately. I feel we all endeavour to respond as quickly as possible
but this if often too late and a person’s situation can have changed almost overnight.
As an MDT, we try and future plan as much as possible and having a mix of skill
sets and knowledge allows us to make provisions but we do not always get it
right and it is important to reflect regularly to improve patient care.
In summary, the NICE
guidelines are a really useful tool to remind everyone to work together and
that no one person is responsible for the care of the person, we are a team and
should work together.