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Zoe Underwood Post 1

18 March 2024, 3:42 PM

MDT and my experience

I work in a local team but try to liaise  closely with the MND MDT, they do also have an SLT in that team.

I feel MDT working can be so important at every stage of care, even pre diagnosis. For example if I have a home visit or a patient in clinic who I suspect presents with some symptoms it is really helpful to liaise with other professionals e.g. social Work OT, physio to gauge their thoughts. Additionally, I often contact the MND MDT to discuss potential cases.

Local teams can work well with the MDT especially for those patients who can no longer attend clinic. With regular reviews we can also monitor and highlight/signpost if there is any deterioration, e.g there have been occasions where I have contacted the MND nurses for review following a routine visit where a patient was extremely anxious.

MDT working to manage nutrition and hydration can be really helpful for early decision making and information sharing. OT/SLT seating (and equipment) and eating and drinking  assessment could optimise nutrition as well as support from the dieticians.

Having links with the social worker can be very useful. I have had some experiences where a patient has reached crisis very rapidly and they have been able to come out quickly. There are also some rapid response services with OT PT and nurses, and although potentially not specialists in MND they can be extremely helpful in a crisis.

Links to outside services such as assistive technology and augmentative communication services are really helpful , I know I can call them to discuss a case if this is needed. They also keep urgent slots available for rapidly deteriorating conditions.Additionally they will conduct joint assessments to lessen the burden of 2 long assessments if suitable. 

With MND being such a complex diagnosis, with so many aspects it's help to either signpost or liaise with local teams, e.g. to ventilation team- if pt is feeling more breathless overnight or having headaches.