Both videos show a real positive experience of their MDT experience. It was interesting to hear the lady in the first video talk about how she wouldn’t go to her GP for advice re MND relating issues but would either contact the care centre or wait for her next appointment. GP’s within my area do not attend the Neuro Palliative MDT that is run, if I see a patient I will send a summary to the GP to ensure they are kept up to date with which services are involved.

The gentleman in the second video discussed his experience in terms of the decision he had made regarding a PEG and not having one. This is like the example / reflection I used in the previous question and ensuring that patients have been given enough information to be able to make an informed decision in their care / future planning.

I have worked in inpatient settings, Hospice and in the community and we can often become a little tunnel visioned in our own area of work and forgetting the challenges other areas / services can face. The MND team at my local care centre attend the Neuro Palliative MDT I chair, most of their appointments are face to face in clinic or virtual, the patients in my area are some distance from the care centre so often do not get home visits. In my role as the Neuro Navigator, I ensure I visit each patient at home for the full MDT assessment. This enables me to get a really good picture of how the person manages at home and what we might need to plan for in the future in terms of equipment etc. I can then report back to other services that can’t facilitate home visits.

It was great to hear both of the people in the video talk about forums, social media, support groups and giving patients that responsibility in some self-management is helpful for helping them feel in control.