Having read 1.5 Organisation of Care in the MND guidelines I was drawn first to the importance of co-ordination and effective communication. When working on a neurological acute ward I met people who were first diagnosed, as well as further along. It was so important in those very early days to put as much in place for them regarding support networks to set them up for the future. We never received guidance on this, it just felt like the right thing to do. We of course always referred to the MND specialist team and this was protocol. This team are essential. They provide a "one stop shop" for communicating as everything goes through them. Now that I work in splinting we liaise with the specialist MND nurse about every MND patient. Due to the significant decline a patient can have in just a few months between reviews it is essential we go in with what they need at that time, so that care can be tailored and targeted. The specialist nurse also contacts us regularly when people's needs change, e.g. requiring a new "head up" splint that provides more support.